How We Got the Diagnosis

First things first, a disclaimer.  Anything you read on this blog is my own personal experience with Tourette Syndrome.  No two people will have the same experience with TS and just because I have come across certain aspects in my own life does not mean that anyone else has or will.  Or that they won't.  That's the fun of TS...you're kind of always on your toes.  

Now that we've got that out of the way, hi!  I was diagnosed as a very young child (4 years old, according to my mother).  My son was diagnosed at 6 years old.  It took quite a bit of time for my official diagnosis because there wasn't as much known about Tourette Syndrome back in the early 90s. Gerry, however, was diagnosed very quickly.  We were lucky that there is more known about TS now and that our doctors took us seriously and didn't dismiss my concerns.

My first step was visiting our pediatrician.  He didn't have much experience with Tourette Syndrome, but referred us to a pediatric neurologist to get a formal diagnosis.  We see a Nemours neurologist, who confirmed the diagnosis.  We're still in the very early stages of TS with Gerry, still learning about his particular tics and triggers, so I don't have a ton of insight just yet.  But I fully believe that, if you can't find humor in the crap you're dealt, then you'll be a whole lot less happy in life...so I laugh a lot.  Because what else are you supposed to do?



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